The New York City Council is considering legislation that proponents say will help more New York residents understand their risk for sickle cell disease, an inherited blood disorder that has been historically overlooked.
The City Council is expected to vote today on the bill, which aims to educate healthcare professionals on sickle cell disease detection and management, as well as understand the medical discrimination sickle cell patients have experienced and how it affects care.
“There is no cure for sickle cell right now, but the diseases and symptoms can be managed with proper care and lifestyle,” Mercedes Narcisse, council member and bill sponsor, said at a stated meeting when the bill was introduced in March. “This program will inform New Yorkers of their healthcare options and increase awareness. I believe it would be critical [to encourage] all New Yorkers, especially the health field, to talk about sickle cell disease and get prevention care.”
The bill would require the New York City health department, in consultation with New York City Health + Hospitals, to develop a sickle cell education program for healthcare professionals working in the city alongside a free genetic screening program for at-risk patients who want to conceive and test for the sickle cell trait.
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